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Children of PROtegni raka

February 2008
Hristian Sirakov is 6 years old from Plovdiv. Hristian is born with a genetic disease - Down Syndrome. His mother is the one who takes complete care of him. So far the child has a modest intellectual and physical detention. A logopedist is visited and amino acids are taken, which stops the development of the protein that blocks the brain activity. These amino acids are taken from the day Hristian was born by different schedules and continuing that is the purpose for financing with 2500 leva.
Ivan Peev is 6 years old from Plovdiv, but these first years of his childhood pass in daily rehabilitation procedures, because he suffers from child cerebral paralysis. Once already the doctors have transplanted stem cells in the University clinic “St. Ivan Rilski” in Sofia and the child’s condition has improved. A second surgery is about to be made, for which the parents are gathering resources. They hope the transplantation of stem cells will help Ivan in treatment of the disease. “ Protegni raka” helped with 2500 leva for the surgery.

Ivan Falakov was born with weight of 3300 g, without complications in the afterbirth period. Problems in the child’s development are settled during the fourth month after he was born. After examination by a doctor a diagnosis is established- child cerebral paralysis. When Ivan becomes 1 year old the parents find out about the specialized clinic “St. Sofia”, where rehabilitation procedures are being done. By January, 2008, Ivan has visited the clinic 6 times for procedures. After each visitation his condition improves, which encourages the parents to go on with further treatment. Help for paying for the previous treatments comes from relatives, in March,2007, the “Protegni raka” fund joins. Now the fund finances the rehabilitation with 1000 leva, for a second year.
Sebri Resul Ali was born in 2001 in Plovdiv. After psycho stress he stops speaking, when he is 2 years old, and in 2005 he has epileptic seizures and the diagnosis Epilepsy. He gets toxic hepatitis and absence ( looking up) by taking the appointed medications, that is why the child must take Suksilep, and for more effective rehabilitation a logopedist must be visited. “Protegni raka” gave 1738 leva for logopedist, psychologist, medications for Sabri for 6 months.
Rushen Riahov is 5 years old from Yakoruda. During his birth, because of pressure, white corpuscles full with water appear. No one registers or warns the parents for this problem. By their wish Rushen is taken for treatment in Sofia, where the following diagnosis have been established: epilepsy, heart disease and one kidney missing. Rushen cannot talk and walk. At the moment procedures for him are needed to be done at “St. Sofia” hospital. Because of their worsening financial condition and the side expenses
(medications, gasoline, food, etc.) the parents cannot manage to pay for the necessary additional procedures. With the help of “Protegni raka” the procedures will grow to 3 and the treatment will last 2 months. In that way a permanent positive effect will be reached and the possibility that the condition of the child to normalize becomes real. February,2008.

Yovcho Gerdzhikov was prematurely born from a pathologically run pregnancy. He has been intubated with an apparatus ventilation and raised in an infant incubator for 2 months. When he is 10 collapses appear, as a result of which he has been treated with Depakin for 2 years. He has been given the diagnosis Child Cerebral Paralysis- a hard form. The boy is taken for procedures- motive rehabilitation, medication therapy, practicing speech defects, but Yavcho cannot move by all himself- he is in a wheelchair. His mother finds it difficult to move him in the wheelchair alone on the stairs, that is why they need a transporter. “Protegni raka” helped partially for the buying of a transporter for Yovcho.
Only 8 months after her birth, Petya Zafirova gets ill by sharp virus infection, which lasts a couple of days. After convulsions caused by the infection she gets paralyzed. Not till a year the first diagnosis are established- encephalopatia and child cerebral paralysis. After treatment with amino acids her condition improves. After she is abandoned by her parents her grandparents are left alone to manage with the disease and receive the guardianship over the child. Now, when Petya is 8, rehabilitation procedures, lessons with a psychologist and other proper teachers, are done in “House for children with damages St. Mina”. By doctors’ recommendation 5 surgeries must be done for engrafting stem cells, every 8 months each. So far 3 of them are done, giving good effect- Petya starts walking, the display of anger decreases, the concentration during a game increases. Now she needs financing for the 4th surgery, for which “Protegni raka” will help.
Velina is 5 years old and she has spent most of her life in hospital rooms, and not at home. A few hours after her birth it is settled that she has very hard valvular disease. The examinations arouse suspicions for Di George syndrome (autoimmune disease – the defensive power of the organism weaken sharply), which afterwards is proved with cyto genetic examination. After the 2 surgeries- on the 6th day after being born and when she is 1 and a half- again she is in hospital, this time with heavy bacterial sepsis, after which she loses the vision of her left eye and gets a number of complications. Her condition is extremely serious, and some of the damages are irreversible. “Protegni raka” takes on to finance partially the treatment of Velina in German.
Teodor and Radost are brother and sister, respectively 7 and 2 years old. They both have the diagnosis child cerebral paralysis(CCP). They live in Sofia with their parents. Teodor suffers from a hard form of CCP- spastic diplegia, followed by deep brain backwardness with a triple decreased possibility for a social adaptation. Radost is with another kind of CCP, followed by a heavy form of intellectual deficit and permanently decreased possibility for a social adaptation. She cannot stand on her feet by herself, she hasn’t got a developed speech. She does not show any interest in relatives and toys, she rarely follows with a look. “Protegni raka” helped with 1000 each child’s rehabilitation in Dr. Chavdarov’s clinic, for a psychologist, logopedist and gymnastics.
Yordan Kamenov is 2 and a half years old from Haskovo. Right after he was born he was given the diagnosis Spastic cerebral paralysis G80 with following diseases. The parents of the child applied for “Protegni raka” fund’s help for paying for treatment procedures, which are not due to the Health department. This is how is provided the opportunity for the prescribed for the treatment of the child procedures to be carried out complexly without any misses. “Protegni raka” helps in procedures for individual logopedic therapy, individual psycho-therapeutic session, specialized kinesitherapy. The parents do not wish to miss even the smallest chance for the child to integrate into the society.
Yana Vasileva is a 2 and a half years old child who suffers from a rare disease- persisting hyperinsulinemia of the suckling (opposite of diabetes disease). She needs special and expensive medications, which will normalize the levels of blood sugar. According to the doctors, when Yana is 3 to 5 years old, there is a serious chance for the treatment to give results and the child to be cured. During the whole 2007 the fund has been helping buying the medications for Yana’s treatment and bands for blood sugar measuring. In 2008 it was approved that “Protegni raka” can continue helping Yana and we all sincerely believe that she will be cured!
Paola Pavlova was prematurely born with weight 1300 g in 2007. As a result from that she has been given the diagnosis Retinopaty , which is in a very advanced stage. Her mother manages to appoint an examination date in Germany, in University clinic Greyswald. “Protegni raka” will help partially for the surgery in the German clinic.
Niki / 1,5 years old/ and Denitsa /2 years old/ Borisovi suffer from Levcynosis- a rare disease which does not allow them to accept 3 irreplaceable amino acids from the food. Without them living is impossible but with the usual quantity in the food they pile up in the nerve system and damages basically the brain. Clinical status leads to heavy brain falling behind and epilepsy. With adequate feeding with specially adapted milks it is possible entirely good development of the baby Denitsa and improvement for the bigger brother Nikolay. “Protegni raka” is engaged to buy special food for the children for a year.
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